Digital data sharing can change healthcare conversations

Posted on 14.10.2022

Dan Beever was delighted when he was asked to join a research team evaluating a new cystic fibrosis (CF) digital health hub designed to help people with CF to adhere to their inhaled medications.

Dan had not only worked in clinical trials but had lived with his own cystic fibrosis for over 30 years and knew the challenges around taking long-term medications.

“When I was first approached to be the public and patient involvement lead for the project, my adherence was terrible,” Dan tells This Is MedTech. “It was probably around the time we had just had our eldest daughter and our routines were completely thrown.” While Dan was not eligible to trial the platform himself, simply talking to people about the behaviour change elements of the hub gave Dan the impetus to get his own medications on track. Once the trial was complete, Dan went on to use the hub himself and is now a strong advocate for the platform.